Thursday, May 8, 2008

recent diagnosis

an update for some - others might not have known what I've had going on in the past couple months. So, I'll post the whole thing for those that don't know.

In late January, I was having some fainting, dizzy, blurry vision, hot flash moments. None of those got my attention until I started having some fast heart pounding that took my breath away - that definitely got my attention. On February 1, I took Brady to our family doctor for his 18 month check up and my/his doctor asked what was going on with me because I "didn't look right". I explained to her the above symptoms I was having so she ran some blood tests. Turns out my thyroid was really out of whack. My T4 (which is a component of the thyroid gland) was at a level of 3.8 - the high end of the normal range is 1.8 - not good. The clinical term for this is "hyperthyroidism".

My family doctor refers me to an endocrinologist that specializes in this and I see him 4 days later. At that appointment, he does an exam which consists of feeling my throat for any swelling or goiters and checking my vision and measuring my eyes. Apparently most people with hyperthyroidism notice symptoms with their vision first. Everything checked out normal. His recommendation was to take a small dose of radioactive iodine that would tell us exactly what kind of hyperthyroidism I had - there are 3 kinds: thyroiditis (which is temporary and comes and goes as it pleases, so unable to treat really), Grave's disease, also known as Hashimoto's; and I can't remember the one of the third.

After taking the radioactive iodine pill, I returned to the hospital to have a scan done. A device was close to my thyroid determining what percentage is was overworking. It resulted in 53.5% - the normal high is 28%. This meant I have Grave's disease. 2 weeks later I was given an appropriate dose of radioactive iodine (based on my %) as treatment. The radioactive iodine is the fastest and most effective treatment for Grave's because it directly attacks the overactive part of the thyroid and destroys those cells. I was unable to work for 4 days (because I work with pregnant gals), couldn't do anything with Brady, couldn't touch anything Brady or James might touch but if a must, had to wear gloves, couldn't be in a car with anyone, couldn't go to the movie theater or any restaurants, had to use a separate bathroom and sleeping arrangements. Now in hindsight, doesn't seem so bad - but at the time, couldn't have felt like longer days.

8 weeks later on April 8 I had my blood tested again to be sure it was working. My levels had to be dropping from the initial 3.8 or I had to do the radioactive iodine again - yuck! I was fortunate and my levels had indeed dropped and were now at 2.0. Still higher than they should be, but going in the right direction. I had my blood tested again today (5/8) to see if they are continuing to drop. My endocrinologist would like to see my number at no higher than 1.5 - cross your fingers - I hope to have results tomorrow!

That's been our immediate world so far - bump in the road, but thank goodness nothing serious. It does involve us having to wait 6 months to add to our family which was an initial bummer, but if this treatment makes the next pregnancy safer for me and baby - it will be worth it!

No comments: